The Beginnings
The origins- when and the how of it- is not clear to me. I do not remember. I am 55 years old and also have hemophilia. However, having hemophilia is not known to predispose to Chronic Kidney Disease (CKD). CKD is occurs normally as a result of diabetes or high blood pressure b.p.) with excessive use of pain-killers (narcotic) being another possibility. I do not have diabetes (no family history either). However, I believe, the other two factors ( b.p., pain-killers) may be the contributing factor.
The earliest signs of kidney disease, I recall, is from my late teenage years, in India. The first signs were the froth in urine. My hemophilia was such an overwhelming issue with the lack of any treatment into my 20s that high b.p. was ignored and never treated. In addition, I have been taking miscellaneous pain-killers available to me to control the pain from bleeds in the joints. A significant contributor, I feel, was when I was taking one or more capsules of the drug (Proxyvon), which I consumed daily for several months after my hip bleed which caused significant nerve damage. I am never sure that Proxyvon was the main reason for CKD, but that's certainly my most used and effective pain relief. For the sake of closure - Proxyvon is banned in the US and recently also in India.
My CKD was first diagnosed, formally, when I came to the US, in the early 1990s, and I saw Dr. James Brandes, who was nephrologist at the Medical College of Wisconsin, Milwaukee. Along with early stages of CKD he started treating me for the high b.p. with a low dose of Enalapril. Enalapril, an ACE inhibitor, was effective. His main advice to treat CKD was to reduce my fluid intake (mainly drink less water). His rationale was that the kidney works like a pump and "you should tax your pump a little less". I complied with this rule for over 10 years. My CKD remained stable with a serum creatinine value a little over 1.0. The frothy urine was my main symptom of CKD until my early 40s and controlling my b.p. was the only treatment.
The origins- when and the how of it- is not clear to me. I do not remember. I am 55 years old and also have hemophilia. However, having hemophilia is not known to predispose to Chronic Kidney Disease (CKD). CKD is occurs normally as a result of diabetes or high blood pressure b.p.) with excessive use of pain-killers (narcotic) being another possibility. I do not have diabetes (no family history either). However, I believe, the other two factors ( b.p., pain-killers) may be the contributing factor.
The earliest signs of kidney disease, I recall, is from my late teenage years, in India. The first signs were the froth in urine. My hemophilia was such an overwhelming issue with the lack of any treatment into my 20s that high b.p. was ignored and never treated. In addition, I have been taking miscellaneous pain-killers available to me to control the pain from bleeds in the joints. A significant contributor, I feel, was when I was taking one or more capsules of the drug (Proxyvon), which I consumed daily for several months after my hip bleed which caused significant nerve damage. I am never sure that Proxyvon was the main reason for CKD, but that's certainly my most used and effective pain relief. For the sake of closure - Proxyvon is banned in the US and recently also in India.
My CKD was first diagnosed, formally, when I came to the US, in the early 1990s, and I saw Dr. James Brandes, who was nephrologist at the Medical College of Wisconsin, Milwaukee. Along with early stages of CKD he started treating me for the high b.p. with a low dose of Enalapril. Enalapril, an ACE inhibitor, was effective. His main advice to treat CKD was to reduce my fluid intake (mainly drink less water). His rationale was that the kidney works like a pump and "you should tax your pump a little less". I complied with this rule for over 10 years. My CKD remained stable with a serum creatinine value a little over 1.0. The frothy urine was my main symptom of CKD until my early 40s and controlling my b.p. was the only treatment.
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