Early transplant thoughts (April-Oct)
A few things triggered the urgency for a kidney transplant in my mind:
1. Dr. Rodby had started mentioning the dread 'dialysis' word in his emails since April 2015.
2. The 'restless leg syndrome' hit home in late August and I felt dialysis was imminent
3. Rajesh's test results were a turning out as a favorable match (Sep )
4. In Late Sep I got some good news at my UW Eval visit. Even though the waiting period on transplant list there was 2.5 years for my blood group if I switched to UW as my Primary transplant center they could use my RUSH listing date as a start date for my waiting period. This meant that I already 'paid-up' on my time on the UW list and could get a deceased donor kidney any day.
My single goal at that point was to avoid dialysis. I was confident I would get a kidney soon one way (Rajesh) or another (deceased). Already at Stage V I modified my diet (dropped the chicken, brought down the toxic BUN levels and started on the Iron tablets to boost the Hb). My blood draws went from once every 1.5 months to every other week in early Oct.
Next major thing on my to-do list is to look into the insurance coverage for a surgery at UW.
A few things triggered the urgency for a kidney transplant in my mind:
1. Dr. Rodby had started mentioning the dread 'dialysis' word in his emails since April 2015.
2. The 'restless leg syndrome' hit home in late August and I felt dialysis was imminent
3. Rajesh's test results were a turning out as a favorable match (Sep )
4. In Late Sep I got some good news at my UW Eval visit. Even though the waiting period on transplant list there was 2.5 years for my blood group if I switched to UW as my Primary transplant center they could use my RUSH listing date as a start date for my waiting period. This meant that I already 'paid-up' on my time on the UW list and could get a deceased donor kidney any day.
My single goal at that point was to avoid dialysis. I was confident I would get a kidney soon one way (Rajesh) or another (deceased). Already at Stage V I modified my diet (dropped the chicken, brought down the toxic BUN levels and started on the Iron tablets to boost the Hb). My blood draws went from once every 1.5 months to every other week in early Oct.
Next major thing on my to-do list is to look into the insurance coverage for a surgery at UW.
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