Data sharing with UW
Based on Caryl's advice both Rajesh and I sent all the tests results from RUSH that we had over to UW. In addition, we authorized UW to get all future test results and CT/X-ray films and reports from RUSH data bank. I also signed off on approvals to access my test results released to My Chart systems, the patient portal, at various hospitals in Chicago. This has become the standard now that patients have different doctors tied to different hospitals. Each hospital requests you (optionally) to sign such forms to share data.
I am a results 'pack-rat'. I found it very useful. First you have a right to get your results. Quest diagnostics (my lab) has to be authorized to send me (think paperwork) my results. If I went for blood draws on a Saturday Quest would Fax me my results by early next Monday morning. Having my results helped me in multiple ways:
1. I was able to monitor trends- is the K high last week, has the eGFR changed. This helped me research on the foods I can/cannot eat and modify my diet.
2. When you are familiar with your results and trends, its easier to speak to your doctor. The doctor begins to trust your judgment a lot more when you can speak the 'trend language'. It helps with dose adjustment and new meds. I did this with my b.p. meds with Dr. Rodby and with Procrit (EPO) with Dr. Dodhia.
3. As noted above its easier to share the results quickly at crunch time with a new doctor or facility. No one has greater urgency to get things done as much as you do. So KNOW YOUR RESULTS WELL!!
4. Also, as in Rajesh's case, in case some numbers get overlooked at the first pass, you can bring it to the doctor's attention.
5. It's easier to get a second opinion and ask intelligent questions if you know your results well.
Based on Caryl's advice both Rajesh and I sent all the tests results from RUSH that we had over to UW. In addition, we authorized UW to get all future test results and CT/X-ray films and reports from RUSH data bank. I also signed off on approvals to access my test results released to My Chart systems, the patient portal, at various hospitals in Chicago. This has become the standard now that patients have different doctors tied to different hospitals. Each hospital requests you (optionally) to sign such forms to share data.
I am a results 'pack-rat'. I found it very useful. First you have a right to get your results. Quest diagnostics (my lab) has to be authorized to send me (think paperwork) my results. If I went for blood draws on a Saturday Quest would Fax me my results by early next Monday morning. Having my results helped me in multiple ways:
1. I was able to monitor trends- is the K high last week, has the eGFR changed. This helped me research on the foods I can/cannot eat and modify my diet.
2. When you are familiar with your results and trends, its easier to speak to your doctor. The doctor begins to trust your judgment a lot more when you can speak the 'trend language'. It helps with dose adjustment and new meds. I did this with my b.p. meds with Dr. Rodby and with Procrit (EPO) with Dr. Dodhia.
3. As noted above its easier to share the results quickly at crunch time with a new doctor or facility. No one has greater urgency to get things done as much as you do. So KNOW YOUR RESULTS WELL!!
4. Also, as in Rajesh's case, in case some numbers get overlooked at the first pass, you can bring it to the doctor's attention.
5. It's easier to get a second opinion and ask intelligent questions if you know your results well.
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